A Dad's Journey

Father of Autistic Twins Speaks Out

Browsing Posts published in September, 2011

I have to admit I really struggle keeping a good attitude about my boys.  Everytime you start to feel you’re making some progress you get kicked back to reality.  Such was the case this morning as we still work on potty training Michael.  It gets frustrating when you have a child at age 11 with issues befitting a 2 year old.

So I did enjoy this piece about an England Soccer Star (who quite frankly I never heard of) dealing with his son’s autism.  He seems to have come to terms with it and I liked his thoughts on dealing with it.

“We hope his condition improves but we’re not banking on it, just doing  everything we can to make sure he has a happy life. He has a load of people  trying to help him, speech and play therapists for example.

“Aiden’s in his own little world, and it is some consolation that he does  seem content with it.”

Read more:  http://www.mirror.co.uk/news/top-stories/2011/09/29/paul-scholes-reveals-son-s-autism-battle-115875-23453858/#ixzz1ZLpLggPS

Fortunately something good came out of playing Ozzie Ozburn tunes.  Apparently, they lured Joshua Robb out of his hiding spot (those tunes would have had the reverse effect on me).   Read the article about tracking device options for your autistic child…

To help recover kids quickly if they do get away, Jim Nalley and Chris Buehler founded Emfinders — a Frisco, Texas-based company that makes tracking devices integrated with the national emergency services system. Since 2010, the company has sold more than 4,000 devices, called EmSeeQ, and aided 60 recoveries.

 

It’s so easy to look the wrong way for just a moment and lose sight of your autistic child.  And the panic in your heart sets in with each moment you can’t locate them.  Articles like the one below are why I’ve considered adding a tracking chip to my boys.

Hell, the dog has a tracking chip.

I know it’s invasive, but tell me what would you rather consider; the total panic of having no idea where your autistic child has gone or the temporary remorse of having to insert a GPS tracking chip under their skin?

I know my answer.

 

L.A. NOW

Southern California — this just in

Crews look for autistic 8-year-old in forest near Lake Arrowhead

September 13, 2011 | 9:00am

Facing the threat of thunderstorms, the search continued Tuesday for a severely autistic 8-year-old boy who ran away from his elementary school into the San Bernardino National Forest, authorities said.  http://latimesblogs.latimes.com/lanow/2011/09/forest-autistic-boy.html

In what purports to be a major breakthrough, scientists are on the verge of discovering different forms of autism, similar to the idea of different forms of cancer.  This could also lead to different forms of treatment, all localized and specialized for the type of autism in question.  This could be a big, big deal!

 

U.S. Researchers Identify Two Autism  Strains in Major Breakthrough

Published September 08, 2011

| News Corp Australian  Papers

Read more: http://www.foxnews.com/health/2011/09/08/us-researchers-identify-two-autism-strains-in-major-breakthrough/#ixzz1XMqaxf4t

 

As Hurricane Irene pummelled the Jersey Shore last weekend, I dreaded the thought of losing power.  Not for the reasons you would expect (e.g. food spoiling, lack of hot water, etc.).  No, I dreaded what it would do to the boy’s tightly wound schedules.  To go to bed without the air purifier be placing at exactly the right setting, the TV set to PBS kids, the volume locked at level 45.  To simply live without electronics and to completely disrupt their routines would be impossible.

Actually, it would be impossible for Sean.  I think Michael would be able to get by, but for Sean it would be an endless frantic tale of doing everything he could to recreate his neatly arranged world.

This is one of the reasons I keep exploring options like STX209, an anti anxiety medication for kids in the spectrum.  When the routine is blown apart by events beyond anyone’s control, it’s essential that everyone keeps their wits about them.

More and more I look at Sean as a ticking time bomb, it doesn’t take much to happen before he becomes uncontrollable.  Sooner or later, we’re going to have to find a better way to help him control his emotions.  I’m not looking at any drug as a panacea, but if it can help mitigate anxiety, it sure would make life a lot easier.