A Dad's Journey

Father of Autistic Twins Speaks Out

Browsing Posts published in July, 2011

Good question, wish I had an answer.

Ideally, I would like to have my boys receive about 20 hours/week of additional OT/ST.  The only problem is I constantly fight for reimbursement from my insurance company and the folks who are the best typically don’t accept insurance.  They have this crazy notion that they should be properly compensated for their performance.

I would like to have a fully funded trust estate in place.  But the best I can do is set up a surviroship trust via life insurance.

I would like to have the boys enjoy a happy, healthy and productive lives.  But the reality is that I can’t even let them visit our neighbor’s pool without total supervision.

I would like to have a future residence in place after Susan and I reach an age where we can no longer be their primary caregiver.  But hell, I don’t even know where I’ll be going at that point.

Hell, there are a lot of things I wish I could do, but the ultimate reality is financial reality (well, maybe health issues trump that reality). 

Planning for an uncertain future sounds like such a cache, but there is hardly a future more uncertain than a family with multiple siblings in the ASD. 

At times like these, I turn to my usual comforts, prayer and alcohol, although you could probably reverse the order.

That’s roughy the new equation for determining why your child may have developed autism.  This is really a sweeping reversal of the old order, which had presumed that genetics played an overwhelming role in autism.

Expect more fallout from this study.  Perhaps someday we will be able to understand the environmental triggers that have come into play.  Who knows maybe it’s some common household products that may still be on the market.  Or perhaps it’s something in the air?  Whatever, the envionmental trigger, knowing how important it is, seemingly requires us to double our efforts in finally understanding, what causes autism?

A new study from Stanford University indicates that environmental factors may be just as important in having an autistic child than genetic factors.

“This is a very significant study because it confirms that genetic factors are involved in the cause of the disorder,” said Dr. Peter Szatmari, a leading autism researcher who is the head of child psychiatry and behavioral neuroscience at McMaster University in Ontario. “But it shifts the focus to the possibility that environmental factors could also be really important.”