A Dad's Journey

Father of Autistic Twins Speaks Out

Browsing Posts published in April, 2011

Just watched the 1st segment.  Very poignant, very well done.   They don’t make journalists like Mr. MacNeil anymore.

Since the boys were born almost 11 years ago, Susan and I have not taken a family vacation.  We have traveled separately.  I have taken an annual “Mancation” golfing trip with some of my college friends.  And Susan has traveled with her mother and our daughter Kate.  But the boys have not done more than an overnight visit to Susan’s sister’s family and that was about 8 years ago.

That all changes in August.  Throwing caution to the wind, we are taking our own version of Family Vacation, Autism style.  We have rented a house for a week at the Outer Banks of North Carolina.  Over the next few months, I will chronicle our preparations.  Believe me, Rommel or Hannibul will have nothing over us when it comes to preparation.  How all that preparation will inevitably go horribly wrong remains to be seen, but I am rather confident in the eventual result.

Still, undeterred, we have already plunked down the healthy deposit for our 5 bedroom house with a private pool. (The pool was a must for keeping the boys both entertained and contained.)

It’s about 9 hours from Central New Jersey to the Outer Banks.  Perhaps my next piece of research will be on appropriate medication I can take while still being able to drive a large vehicle.

As always, wish us luck!

The iPad as cool as it is, is still rather bulky.   A verbal communication tool needs to be convenient and small.  That’s why this new app for the iPhone seems rather intriguing. 

The creator and lead researcher at the University of Toronto, Alexander Levy, says MyVoice, which says words when the iPhone screen is tapped, is advanced for a couple of reasons.

First of all, it is location aware. This means, explains Levy, that the phone knows where you are. Words and phases that are put in ahead of time, will automatically pop up.

“So to give you a very Canadian example. The concept is that if you were to walk into a Tim Hortons, you automatically get words like Timbits and double-double so you can communicate quickly and easily.”

Secondly, as Levy told CBC’s Matt Galloway, the software is supported by a website where caregivers or the user can log on and add words.

Damned if you do and damned if you don’t, that’s the way it is as the parent of an autistic child.  But research indicates you should really think twice about that med regiment: