A Dad's Journey

Father of Autistic Twins Speaks Out

Browsing Posts published in April, 2010

Q: What is your advice for parents of children on the autism spectrum?

A: You have to get kids out and expose them to things, but do this without any surprises, so they know what to expect. You have to find skilled mentors to teach them things. For me, it was an aunt, and it was my science teacher. You need to find the things they’re interested in and good at and expand on this. If your child likes to draw trains, broaden it to the station. Where does the train go? Keep broadening it.

Below is an article that appeared yesterday in the LA Times.  It looks at the differences in spectrum severity depending on the age that the autism symptoms develop.  Apparently, children with regressive autism, who start out developing typically and then regress are more likely to have long term severe autism.  Here is a link to the piece in the LA Times as well as the original source material. (The Journal of Autism & Developmental Disorders)

http://latimesblogs.latimes.com/booster_shots/2010/04/autism-symptoms-regression.html

http://www.springerlink.com/content/w466422333j42521/?p=dab1468d1fde464aae0917e6c4dfdb90&pi=5

This article about a Georgia family running through their savings and battling insurance agencies has given me pause.  I don’t feel I’m doing enough for the boys right now.

http://www.ajc.com/news/autism-caught-in-insurance-467437.html

I have focused more on a long term plan because I don’t want to leave them in a situation with no savings to fall back on, but I have done that by cutting out the extra therapy they were receiving from Douglass College Outreach.

As the title says, parents of autistic children need to balance the cost of therapy now against the needs of the future.   I feel that my boys are too comfortable in their cocoons and it will take professional help to bring them out of it.

I guess I still entertain hopes that they will cultivate a savant level skill or heck just find something they really enjoy.

At the end of the day, the hope of the parent never fades.

A rather interesting study.  Time will tell if there’s any teeth to the claims they make.

Research in the FASEB Journal describes discrete epigenetic changes of DNA in a certain subgroup of twins and siblings with autism

A new discovery raises hope that autism may be more easily diagnosed and that its effects may be more reversible than previously thought. In a new study appearing online in The FASEB Journal (http://www.fasebj.org), scientists have identified a way to detect the disorder using blood and have discovered that drugs which affect the methylation state (“DNA tagging”) of genes could reverse autism’s effects. This type of drug is already being used in some cancer treatments.

http://www.eurekalert.org/pub_releases/2010-04/foas-nso040810.php

I’ve been moving Michael from the master bed he has deemed for himself in the middle of the night and depositing him in the smaller middle room that his parents have deemed for Michael.

It all plays out like a badly written French farce.  Lots of doors opening and closing, exit left, enter right.  Folks bumping in the night.

And I then wake up exhausted, but where???

It takes me a couple of minutes to get my bearings and then see who, if anyone, is sleeping with me.  Quite frankly, the whole thing is a bit unnerving.  I can’t even begin to allow myself a sexual thought because I will likely be freaked out once I discover who I’m sharing my bed with.

Ah, for the day, the boys actually put themselves to sleep in their own room.  Then I will know what heaven must be like.

Here’s the story folks.  For the past five year, my blog has been hosted by an Internet Service Provider as a freebie because my company did a lot of business with them.

Apparently, “ADadsJourney” was no longer a priority for them, so they just took it down along with all my archives.

Being somewhat tech challenged, it has taken me a little while to get back up to speed.   Truth be told, I still am getting used to this new site, but at least we’re using 21st Century blog software, so hopefully, I’m able to add more features as I move along.

So once again, I will be blogging about my twin sons, Michael & Sean, who are getting ready to turn 10.  As well as all the latest theories, articles of interest impacting the fathers of autistic kids.

I hope to make this blog less one sided than before and allow for more interaction.   Certainly feel free to comment on anything you see here, whether you agree with me or not.